June 07, 2010

2010 Race for Ellie

We are so lucky. Our two grandchildren are healthy and happy and secure with their surroundings. We realize that all are not so lucky.

Very good friends of ours have experienced over the years heart breaking medical concerns with their granddaughter, Ellie a small 8 year old child. She suffers from a little known disease called mitochondrial disease. She happens to have a unique type of the disease which is very aggressive. As a twin with a brother, she appeared normal at birth. Around 6 months her development began to slow. Finally, at age two, she was diagnosed with mitochondrial disease and her parents were given bleak reports.

Now, at 8, she has lost the ability to walk. She cannot speak, eat or breath on her own. Her body is failing her. With a quick mind, she is aware, and she continues to have amazing character. She smiles, laughs and gives the “thumbs up” sign.

This is a very complex disease, genetic and the cells that create the energy the body needs to function are impaired. Everyday is a struggle to survive. Ellie’s parents are on a mission to help her survive and to raise awareness and funding for research for this disease.

The event they established as a yearly event will soon to be held Saturday, June 13, 2010 at Powell, Ohio Liberty Park is a 5 K run, 1 mile walk and kid’s run, for this special cause, Race for Ellie. This is a great family activity and awards are given to the top three male and female finishers. There are a large number of categories to enter from 19 and under to over 60. Information is available at or by calling 614-306-2109. Donations are accepted if you cannot attend.

Help Ellie! At the same time help provide funding for this very debilitating disease, mitochondrial disease. Give from your heart! Visit Ellie’s website at www.raceforellie.org or for more information call Phil Giessler at 614-888-0307, Cam Taylor Co., Realtors.

Posted by: Phil Giessler